20 May 2006 marks the second International
Clinical Trials Day - a day designed to raise awareness amongst
patients and the public around the methods and challenges of
clinical research. It is also aimed to foster discussion and debate
among participants in clinical trials, practitioners, researchers
and funders of clinical research.
The day will be marked across a number of
European cities with forums of patients and citizens taking part in
discussions on transparency, patient protection, information,
education, and on their participation in clinical trials. In
addition, a workshop and press conference in Brussels under the
auspices of the European Commission will celebrate this event.
Much has occurred to strengthen clinical
research in the UK since the first International Clinical Trials
Day was established in 2005. Major effort and resources have been
put into building the UK’s capacity to carry out high quality
clinical trials and other well designed studies through the
development of the UK Clinical Research Network (UKCRN). The UK
Health Departments are working closely with the UKCRC and the UKCRN
to ensure that the development of this new research infrastructure
in the NHS is taken forward through a UK-wide approach.
This week has seen the launch of two major
initiatives designed to boost clinical research in the UK:
Diabetes Research Network
The UK Clinical Research Network and the
Department of Health have appointed eight Local Research Networks
to support the delivery and conduct of clinical diabetes
research.
Each network will be tasked with increasing patient and public
involvement in diabetes research, as well as supporting workforce
development and open and transparent communication.
They will also work closely with their counterparts in Scotland,
Northern Ireland and Wales to support the creation of a UK-wide
clinical research infrastructure for diabetes research. In Scotland
diabetes is one of three identified areas where networks have been
established under UKCRN so far, in Northern Ireland diabetes will
be supported as part of the Northern Ireland Clinical Research
Network and in Wales the diabetes network is one of nine thematic
research networks.
Further information can be found on the
UKCRN website
School for Primary Care
Research
Patients are set to receive even better care
in primary care settings and will have the opportunity to
participate in more research in these areas thanks to a new School
for Primary Care Research launched by Health Minister Andy Burnham
this week.
The National Institute for Health Research
(NIHR) School for Primary Care Research will receive £3million
funding per year with the express aim of increasing the evidence
base for primary care practice. This will mean research into
the huge range of areas of professional practice relevant to
primary care. The School will investigate a range of new ways of
improving care such as finding new methods of preventing ill
health, and evaluating novel ways of providing information to
patients and staff.
More information can be found on the
Department of Health website