The UK Clinical Research Collaboration (UKCRC) respects the privacy of people who use its website and when personal information is used we do so in accordance with the Data Protection Act 1998. In order to administer our website, provide email alert services and consult on our work, the UKCRC occasionally captures personal data. This is done in a number of ways:
- Email notification service. The website has an optional email alert service which notifies people when new information has been posted on different areas of the site. It also has an optional electronic newsletter providing general news on the activities of the UKCRC. If you register for these services your email address and other information given when registering will be held on the system for the purpose providing this service. It will not be passed on to third parties. If you wish to discontinue with the email notification service please contact the UKCRC.
- Enquiry and registration forms. The UKCRC may collect data through online forms in order to handle enquiries on specific subjects or for conference/meeting registration. This will typically be personal details including your name, professional position, postal address, e-mail address and telephone number. This data will be held on the system and may be passed to third party organisations specifically for the purposes of providing these services. If you submit personal data on online forms, you are agreeing to its use for these purposes.
- Website consultation. The UKCRC carries out web-based consultations in relation to specific work topics. Any personal information you submit in response to our consultation exercises may be retained and used by the UKCRC for the purpose of developing its clinical guidelines and technology appraisals and for work on interventional procedures or other projects specified and may be kept on our database for the purpose of future reference, research and statistical analysis. The UKCRC may wish to publish responses or make them available to third parties such as other consultees involved in our work. The UKCRC may also disclose aggregated data taken from the consultation process in an anonymised form to organisations approved by the UKCRC for the purposes of research. If you submit personal data as part of these consultations, you are agreeing to its use for this purpose.