UKCRC R&D Advisory Group to Connecting for Health

Report of the Research Simulations

The report highlights the technical, regulatory and governance issues related to using the NHS Care Records Service as a platform for high quality health research.

Full Report : UKCRC Advisory Group for Connecting for Health: The Report of the Research Simulations
(Note: This file is 120 pages and 555kb file size) 

Letter of support from Lord Hunt, Minister of State for Quality, Department of Health

The report is also available to download section by section:
Executive Summary
Introduction
Background and Objectives
Potential Gains for UK Healthcare
Summary of Key Findings
Recommendations

Annex A:
Report of the four Research Simulations
Surveillance Simulation Report
Clinical Trials Simulation Report
Prospective Tracking of a Known Cohort Simulation
Observational Epidemiology Simulation

Annex B:
Membership & TORS for Advisory Group

Annex C:
Membership of the Simulation Subgroup

As an outcome of this report the Department of Health’s Director General of R&D and the NHS CfH Director of IT Services, the UKCRC Advisory Group’s sponsors, will be developing a programme of work to begin to address the recommendations. This programme of work will be taken forward in tandem with measures to strengthen information governance of health information for uses other than direct patient care.